The Gentlemen Study Pre-Screening Survey |
Hello, and welcome to the GENTleMEN Study.
The goal of this study is to improve access to genetic services by providing free testing and counseling to men with advanced prostate cancer to see if they’ve inherited alterations in genes linked to this disease. Participants who are found to carry a mutation can share their results with their doctor and family members. They and will have access to genetic counseling by phone or face-to-face at Seattle Cancer Care Alliance.
To qualify for this study, participants must have a verified diagnosis of advanced prostate cancer, otherwise known as metastatic prostate cancer. This means that the prostate cancer has spread outside the prostate to distant parts of the body, e.g. bone or liver.
As a participant in this study, we will be asking you questions to help us learn about you and whether this is an effective way to deliver genetic services to men with prostate cancer.
Please try to answer as best you can.
If you would like to learn more about this study, please see this article.
TIPS BEFORE YOU START:
You will need to complete the questionnaire to proceed with the study. These questions should take about 40 minutes to complete.
You can ask a family member or friend to help you. You can also ask the study team for help.
Before you start, you may want to collect your medical information, records and, all the information you can collect about your family history of cancer: For example, which family members had cancer, how old they were when they were diagnosed, if they are still living or if cancer was a cause of death.
You can save your answers and come back to finish the questions later.
If you have questions while completing the study, you can call us at the toll-free number 877-606-GENT(4368) or email us at gentmen@uw.edu.